While most brothers tend to have a lot in common, Jared and Cameron Wohl of New Jersey share a rare bond, a liver. Cameron was diagnosed with a rare autoimmune disease that primarily affected his liver and when his condition took a turn for the worse last summer, a liver transplant became the only option.
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NEW YORK (PIX11) -- While most brothers tend to have a lot in common, Jared and Cameron Wohl of Morris Plains, N.J. share the greatest bond of all – a liver.
Diagnosed at 13 with a rare autoimmune disease that primarily affected his liver, Cameron’s condition took a turn for the worse in the summer of 2013 when a liver transplant became the only option.
“You always think ‘well not me, it’s not gonna be me’ but I was one of those many people waiting for a liver,” Wohl told PIX11 News.
Cameron found himself on an organ waiting list, a list that sees 18 Americans die each day waiting for an organ. Shockingly enough, a new person is added every 10 minutes.
“I would be lying if I said there weren’t times that I felt like giving up but the light at the end of the tunnel was that things do happen for a reason.”
That light came in the form of older brother Jared who stepped up to the plate, offering up 65% of his liver after he was approved to be a living donor to Cameron.
A decision he says he didn’t think twice about.
“It just speaks to the testament of unity and love and what family is truly meant to embody which is this act of selflessness,” Jared Wohl told PIX11 News.
On February 11, 2014, the brothers underwent a successful liver transplant at New York-Presbyterian Hospital.
It’s a journey they documented on film -- appropriately titled “65 Percent” -- all in an effort to start a conversation on organ donation and to prove that “We Are Vital to Each other” – an acronym for their movement.
“It’s been my experience that if you really want to connect with individuals, you have to let your guard down and literally bring them into your experience,” explained Jared Wohl, on why they put their story out there. “Let them experience it with you.”
After a year that could be described as pretty eventful, Cameron can’t help but reflect.
“A year ago today they found a tumor on my liver that expedited the transplant,” he said. “Now today we’re in our post production stages of the film. It’s amazing.”
What a difference a year makes for the brothers from Morris Plains and it’s their message that they hope sheds light and changes the world.
“This can affect anyone at any point in their lives and people need to learn about before that time of tragedy,” Jared Wohl said.
For more information on the Wave Set, visit their website.
Watch the trailer for their documentary “65 Percent” below: https://www.youtube.com/watch?v=yE28bZi7_Ms
Source: http://pix11.com/2014/08/26/nj-man-gives-brother-second-chance-at-life-with-liver-transplant/
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10 PHOTOS
Jared, l, and Cameron Wohl. Jared, became a living liver donor for his brother Cameron. The Morris Plains brothers formed The Wave Set, an organization dedicated to raising consciousness about the number of Americans on the organ transplant list and the number who die while waiting. August 8, 2014, Morris Plains, NJ. Photo by Bob Karp
BROTHERS 1991: Morris Plains brothers Jared Wohl, 5, right, and his brother Cameron Wohl, 2, show off their matching footie pajamas. Earlier this year, Jared, now 28, became a living liver donor for Cameron, who has PSC or primary sclerosing cholangitis.
ON THE ICE 1996: At ages 9 and 6, brothers Jared and Cameron Wohl, respectively, play ice hockey. Earlier this year, Jared, now 28, became a living liver donor for Cameron, who has PSC or primary sclerosing cholangitis.
ALMOST TIME FEB. 11, 2014: Jared Wohl, 28, of Morris Plains, gets a hug of support from his parents, Sheldon and Robin Wohl, right before he goes into the operating room at New York-Presbyterian Hospital/Columbia University Medical Center this past February. He was a living liver donor for his brother Cameron Wohl, 25, who needed needed the transplant to save his life. Cameron has PSC, or primary sclerosing cholangitis.
AN ENCOURAGING WORD FEB. 11, 2014: Cameron Wohl, 25, of Morris Plains shares a moment with his surgeon, Dr. Jean Emond, an hour before he was taken into the operating room at New York-Presbyterian Hospital/Columbia University Medical Center last February for a living donor liver transplant. The young man has PSC, or primary sclerosing cholangitis. The donor was his brother Jared Wohl, 28.
POST-SURGICAL REUNION FEB. 12, 2014: Jared Wohl, 28, left, and his little brother Cameron Wohl, 25, see each other for the first time after living donor liver transplant surgery at New York-Presbyterian Hospital/Columbia University Medical Center this past February. Jared gave 65 percent of his liver to Cameron, who has PSC, or primary sclerosing cholangitis. The surgery saved Cameron’s life.
A SERENE MOMENT FEB. 15, 2014: A few days after living donor liver transplant surgery this past February, Cameron Wohl, 25, of Morris Plains, began walking the halls at New York-Presbyterian Hospital/Columbia University Medical Center. He came across this beautiful view of New York City. The donor for the surgery was his 28-year-old Jared Wohl. The surgery saved Cameron’s life.
ALL SMILES FEB. 18, 2014: The Wohl family of Morris Plains gathers for a group photo on the seventh or eighth day after Cameron Wohl, 25, second from the right, underwent a living donor liver transplant. The donor was his 28-year-old brother Jared, far right, who had his own medical team for the surgery. Also pictured at New York-Presbyterian Hospital/Columbia University Medical Center are, from the left, mother Robin, father Sheldon, and sisters Dara and Brittany. Cameron has PSC, or primary sclerosing cholangitis.
GOING HOME FEB. 19, 2014: Cameron Wohl, 25, left, and his brother Jared, 28, give a peace sign as they prepare to go home to Morris Plains after living donor liver transplant surgery at New York-Presbyterian Hospital/Columbia University Medical Center this past February. Jared gave 65 percent of his liver to Cameron, who has PSC, or primary sclerosing cholangitis.
Cameron, l, and Jared Wohl. Jared, became a living liver donor for his brother Cameron. The Morris Plains brothers formed The Wave Set, an organization dedicated to raising consciousness about the number of Americans on the organ transplant list and the number who die while waiting. August 8, 2014, Morris Plains, NJ. Photo by Bob Karp
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MORRIS PLAINS –
Brothers Jared and Cameron Wohl of Morris Plains have been close since childhood, but this past February they shared the ultimate bond when 28-year-old Jared, a teacher at Parsippany High School, became a living liver donor for his younger sibling.
The operation, performed by two medical teams at New York-Presbyterian Hospital/Columbia University Medical Center, saved the life of Cameron, now 25.
Still, it took Cameron almost two years to accept Jared's gift — 65 percent of his healthy liver.
Living donor liver transplants began in 1989 in the United States, doctors say, but they're not common. Last year, there were 6,455 liver transplants performed nationwide, according to the United Network for Organ Sharing. Only 252 used living donors.
Today, six months out of surgery, both brothers are doing well. Cameron, who recently returned to work at Apple, feels better than ever.
"A healthy liver grows back to three-quarters of its normal size in three months. It grows very fast," said Dr. Jean Emond, Cameron's surgeon and vice chair and chief of transplantation at New York-Presbyterian Hospital/Columbia University Medical Center. "Functioning is normal in about three months. It will grow back to normal size in a year.
"Basically, you're making two livers out of one," he added. "The piece you took out grows in the recipient, and the piece you leave behind grows in the donor."
The brothers, both artists in their own rights, are actively promoting The WAVE SET, an organization they founded to educate people about organ donation and encourage them to donate.
But there was a time when Cameron felt uneasy about his brother's offered gift.
"There was my brother saying, 'I want to go under the knife for you,'" Cameron recalled. "The last thing — the only thing — I could think was, God forbid something happens to him. Am I ready? So I tried to focus my mind, get in a good place, become very physically active, follow a very strict diet.
"I did everything in my power before having to go through the transplant," he added, "but my approach was a risk in itself because my disease could progress."
It did.
Four diseases
Actually, Cameron had four diseases. At 12, he was diagnosed with UC (ulcerative colitis), a chronic colon disease in which the immune system mistakes food and bacteria for foreign substances.
In his twenties, he developed PSC (primary sclerosing cholangitis), a rare condition that afflicts 5 percent of UC patients and affects the bile ducts of the liver. Soon after came autoimmune hepatitis.
Over time, doctors told Cameron, cirrhosis would set in and his liver would fail. He was treated with lots of medication, got a MELD (Model for End-Stage Liver Disease) score, and went on a waiting list for a liver from a cadaver. Cameron said MELD scores range from six to 36 — six designating a healthy liver and 36 one in need of imminent transplant.
To get any meaningful priority on the list, Cameron needed a 25. He scored 15. The scores rarely reflect how truly sick PSC patients are, he explained.
"In the meantime, more and more of my liver was becoming useless," Cameron said. "In 2012, my quality of life was really diminishing."
Around that time doctors told him his youthful ability to bounce back made him an excellent candidate for a living donor liver transplantation, though he'd need a donor who was a very healthy person about Cameron's size and with the same blood type. That's when Jared stepped forward, volunteering to undergo two full days of testing, including chest X-rays, EKGs, full body scans, and a psychological evaluation.
"When we found out the amazing news that I had been approved as a living donor," Jared said, "I never questioned for a second whether I would do it. It was a question of whether Cameron would accept the fact he had a viable donor.
"At that time," he added, "Cameron wasn't feeling as sick as he thought he needed to be in order to receive that living donor transplant."
All that changed, though, in August 2013 when a routine MRI showed a lesion on Cameron's liver. For a PSC patient, doctors said, that probably meant cholangiocarcinoma — bile duct cancer. He was going to need that transplant, but first he had to undergo chemoembolization and heat ablation to eradicate every cancer cell in his body.
"They need to know you're healthy enough to accept a new organ," Cameron said.
"Also, why put a donor, who's completely healthy, at risk for a procedure that may not be successful for the recipient?" Jared added.
Risk factor
The transplant surgery isn't risk free for the donor, according to Emond.
"There's a one in 1,000 chance a donor could die," the surgeon explained, but that is a worst-case scenario. More likely, a donor will experience conditions that are annoying but not life threatening — urinary tract infection, pneumonia, liver leakage, or, as happened to Jared, a wound infection.
"Those are all things that can be taken care of," Emond said. "There are very few people who have long-term consequences from donation."
Transplant day arrived on Feb. 11. The Wohl family — the brothers, father Sheldon, mother Robin, and sisters Dara and Brittany — arrived at the New York City hospital early in the morning. To the brothers, the whole thing seemed surreal, especially after years of waiting.
"Everybody was ready," Jared said. "It was almost as though we wanted to get it over with and start living our lives and have Cameron feeling healthy."
Silver Style Pictures, a Red Bank film and video production company, was ready, too. Its film team was there to capture the experience for "65 Percent," a soon-to-be-released documentary about the family's experience that had been commissioned by the brothers through The WAVE SET. Silver Style is founded and run by two brothers, Michael and Jon Altino.
"Being there, the day of the transplant, was very emotional," Michael Altino said. "Before he made his way to surgery, Jared came over to Cameron. This would be the last time they saw each other until they were both in recovery. Raw emotion took over and we could see it in the entire family.
"Cameron and Jared embraced each other and shared a few words before Jared left," he added. "We could see that each was extremely proud of what the other was doing, because without each other none of this would have been possible."
Two medical teams
Each brother had his own medical team, both covered by Cameron's insurance company. Surgery, starting at 7 a.m., lasted five hours for Jared and eight for Cameron.
While recovering, the brothers shared a copy of "I Can See Clearly Now," the then-new memoir by motivational speaker Wayne Dyer's. In it, he writes about how he can view the divine plan for his life in retrospect.
"That book really helped me get through recovery," said Jared, who said he experienced a lot of pain as well as the post-op infection. "The whole experience, even the infection, helped me realize how strong I am, mentally and physically."
Cameron took a lot of medication after the transplant, some only for six months, some for the rest of his life.
"It took awhile to rid my body of that exhaustion. My body was in shock. It had gone through so much trauma," he said. "I had to be careful about engaging my core because I didn't want to develop a surgical hernia. But the last few weeks have been the best, physically and mentally, since the transplant. I've really felt amazing.
"I had my first really good workout recently," he added. "Now I'm allowed to swim, so I've got my muscles working."
Additionally, Cameron's prognosis is excellent, according to Emond, who said that a liver transplant can be a cure for PSC.
"Over the long term, 10 percent of people will get the disease back," he said, adding that PSC isn't fully understood. "It does come back in some people, but it's not that common."
18 deaths a day
The WAVE SET has given both brothers a positive and productive subject on which to focus in the past months. WAVE is an acronym for "We Are Vital to Each Other" and "SET" refers to all the people who join their mission, reflected in the documentary, for which Jared wrote some of the music; the brothers' speaking engagements; and their campaign to encourage people to sign up to donate desperately needed organs.
SEE TRAILER: https://www.youtube.com/watch?v=FxB41MNQ4Mk
Cameron said he's already lost friends in the PSC community who died while waiting for a liver.
Every day, 18 Americans die while waiting for a transplant and a new person is added to the waiting list every 10 minutes, according to the U.S. Department of Health and Human Services.
Donate Life America, a nonprofit alliance, reports that 90 percent of Americans say they support donation, but only 30 percent know the steps they need to take to become a donor.
"We have confidence we'll reach the masses and emotionally connect with people," Jared said. "Unless you're going through something personally, you have no association to the cause.
That's why Cameron and I depicted our own family's experience in the documentary. Hopefully, people will sit back and realize, Hey, that could be me or my brother or sister."
Currently, no hospital in New Jersey performs living donor liver transplants, according to Dr. Nikolaos Pyrsopoulos, medical director for liver transplantation at Rutgers New Jersey Medical School.
"But we are entertaining the possibility of starting a living donor liver program at University Hospital in Newark shortly," he said, adding that of those 17,000 Americans now waiting for a liver, only 6,000 will become transplanted. He thinks that's too big a gap.
"Living liver donation is a very altruistic and very honorable situation and should be seriously considered so we will be able to decrease the number of people dying," Pyrsopoulos said. He added, though, that extremely thorough evaluations of donors are key to safety and success.
Emond takes inspiration from the Wohl family, remaining moved by their loving bonds.
"This is an intense thing to go through," he said, "but it's also a total life-affirming experience."
Lorraine Ash: 973-428-6660; lash@njpressmedia.com
Learn more
• The Wave Set, www.thewaveset.com
• National Institutes of Health Adult to Adult Living Donor Liver Transplantation Cohort Study, www.nih-a2all.org
WATCH TRAILER ON DESKTOP:
https://www.youtube.com/watch?v=FxB41MNQ4Mk
Source: http://www.dailyrecord.com/story/news/local/morris-county/local-heroes/2014/08/17/morris-plains-brothers-share-gift-liver-transplant/14192015/, Sunday Daily Record (print), p.1
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Jared Wohl, Tim Blattner, Rotary President, and Sheldon Wohl, (father of Jared)
The Rotary Club of the Caldwells was honored to host brothers Jared and Cameron Wohl from The Wave Set recently at the Cloverleaf Tavern.
The Wave Set was founded by brothers, Jared and Cameron Wohl.
Younger brother Cameron was diagnosed with a rare autoimmune disease, primarily affecting his liver, at the age of 13. About a decade later (in August of 2013), things took an unfortunate turn when his doctors explained that they had spotted a tumor on his liver. A liver transplant had become necessary in order for him to continue his life, but due to the high demand of organs, regardless of his critical state, he was nowhere near the top of the list.
When doctors posed the idea of undergoing a living-donor transplant (where someone donates 40-60 percent of their liver, having both the donor and recipient's liver regenerate to full size) Jared jumped at the opportunity.
In December 2013, The Wave Set launched a successful crowd-funding campaign to raise money for the production of a documentary depicting their family’s journey through the transplant experience.
The Wave Set is an organization dedicated to giving others a second chance at life by spreading awareness and educating on the importance of organ donation.
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Cameron and Jared Wohl were guest speakers at the Kiwanis Club of Greater Parsippany on Thursday, June 26. Cameron and Jared are founders of “The Wave Set.” The Wave Set helps create a culture of love, unity and selflessness, thus showing the world that “We Are Vital to Each other”.
Kiwanis President, Carol Tiesi, a teacher at Littleton Elementary School was Cameron’s second grade teacher more than fifteen years ago.
Here is the story of the two brothers. Jared and Cameron were ironically born three years apart to the day. However, now their shared birthday isn’t the only fascinating connection between the two of them.
Cameron Wohl was diagnosed with a rare autoimmune disease, primarily affecting his liver, at the age of 13. About a decade later (in August of 2013), things took an unfortunate turn when his doctors explained that they had spotted a tumor on his liver and his disease had been consistently progressing.
A liver transplant had become necessary in order for him to continue his life, but due to the high demand of organs, regardless of his critical state, he was nowhere near the top of the list.
As fate would have it, the liver, which is the organ that Cameron was in need of, has the ability to regenerate. Thus, enabling a recipient to receive a portion of someone else’s liver, known as a “living-donor” transplant.
Unfortunately, not everyone is lucky enough to be eligible for this procedure, as many people have to wait for a deceased donor. He was lucky to be offered the “living-donor” option, however the hard part wasn’t over.
Cameron still had to find a viable match and someone willing enough to give him a second chance at life.
As soon as his brother Jared heard the news, Jared immediately sought to be evaluated to see if he met the criteria.
After extensive testing, they received the most exciting news. Jared was accepted to be his younger brother’s living-donor and they underwent the successful transplant on Tuesday, February 11, 2014; a day that they will never forget.
They officially made their TV Debut on April 24 during ABC’s Emmy Winning Show, “Organ Donors: Connected For Life.” The show opened up it’s 2014 episode with the story about the Wohl’s.
The Wave Set was founded by two Parsippany brothers, Jared and Cameron. In December 2013, they launched a successful crowd-funding campaign to raise money for the production of a documentary depicting their family’s journey through the transplant experience.
They were hoping to raise $30,000 for the documentary, but was able to raise $34,796. In addition, the brothers launched a line of The Wave Set apparel, which was used to incentivize all potential contributors to support their campaign. This brought additional awareness by acting as a visual representation of their advocacy to the cause.
The Wave Set looks to set forth their first grassroots campaign, which will raise additional awareness by planning and executing in-person speaking engagements, hosting college visits, and facilitating live events nationwide. These campaigns also aim to share the stories of people all over the world who face the harsh realities of the need for a life-saving organ transplant.
Currently, on average 18 people die every day while awaiting an organ transplant and every 10 minutes another person is added to the waiting list. To register to become an organ donor in New Jersey, click here.
The brothers believe that these numbers are inexcusable and are doing everything in their power to change that. It all begins with their documentary, currently being produced.
They are in the final stages of this real-life depiction of what it has been like for the brothers and their family during their time of adversity, just as it is for the nearly 78,000 other active transplant candidates. They expect the documentary to be released during the Summer of 2014.
The documentary is the first step in introducing their brand “The Wave Set”, educating the world that we truly are vital to each other.
For more information on Cameron, Jared or The Wave Set, click here.
Documentation for this story was taken from The Wave Set website.
Source: http://parsippanyfocus.com/2014/06/26/story-two-brothers-cameron-jared-wohl/
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Parsippany High School held its annual Redstock on Saturday, June 7. The public participated in many sports activities and games at the school’s football field. The highlight of the festival was the Powder Puff flag football game between the senior and junior girls.
The event started at 12:00 Noon and ended at 4:00 p.m. and offered food, face painting, arts and crafts, bounce house, dunk tank, games and prizes and live entertainment. The PTSA will held a Tricky Tray and Raffle.
Boiling Springs Bank, C2 Education, Class Act Embroidery, Re/Max, The Wave Set, Parsippany Area Chamber of Commerce, Dancers Pointe Studio, Parsippany Municipal Alliance Committee, Vitality Handmade Designs, Parsippany Police Department, Beach Snaps Rita’s Italian Ice, Project Graduation, Anthony & Sons and Holistic Health Center had tables supplying information to the public.
Following the event was the Central Middle School Flag Football game then the Hawkeye Community Awards and the annual Juniors vs. Seniors PowderPuff Football game. Parsippany Focus covered all three events, so look for the articles on those events too!
The Wave Set – Dara Wohl, Jared Wohl and Brittany Wohl. The Wave Set is an organization dedicated to giving others a second chance at life by spreading awareness and educating on the importance of organ donation. While cultivating a brand that correlates with this cause, The Wave Set helps create a culture of love, unity and selflessness, thus showing the world that “We Are Vital to Each other”.
Source: http://parsippanyfocus.com/2014/06/07/phsredstock/
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NEW YORK –
We New Yorkers, so proud of our "top dog status" in so many areas, are now last when it comes to donating life-saving organs. Every other state in the nation has more organ donors than New York.WABC-TV, in connection with NewYork-Presbyterian Hospital is inviting viewers to answer the call to be an organ donor. We'll sort through the myths and talk to the experts. "Organ Donors: Connected for Life" is a half-hour special hosted by Eyewitness News Anchor Liz Cho.
We'll learn about living donors and hear how one young man from New Jersey donated a piece of his liver to his brother and how they're both on a crusade to spread the word about the importance of registering to be an organ donor. We'll see how a donated kidney changed the quality of life of a Staten Island man and a Broadway actor.
Deceased donors are heroes to many families in our area, including a young father with a new heart. Outreach and education is crucial and we'll see what's being done to raise awareness. We'll hear from former NFL pro Boomer Esiason about his personal reasons for bringing awareness to this issue. And we'll get answers to the most asked questions when it comes to organ donation.
Experts featured include physicians and surgeons from NY-Presbyterian Hospital, Weill Cornell Medical Center and the New York Organ Donor Network.
Note: Recently, "Connected for Life" from 2013 was awarded the New York Emmy award for a special in the Societal Concerns category.
We hope you can join us for "Organ Donors: Connected for Life" on Saturday, April 26th at 7 p.m.
Resources Featured on our Show:
Where to register as an organ donor:
New York State:
www.donatelifeny.org
646-291-4444
NY Organ Donor Network registry
www.donatelifeny.org
646-291-4444
24 Hour Hospital Referral Line 1-800-GIFT-4-NY
donatelifeny.org/take-action
New Jersey:
www.donatelifenj.org
800-742-7365
New Jersey Organ and Tissue Sharing Network
1-800-ShareNJ
Connecticut
www.ctorganandtissuedonation.org
203-387-1549
To find out how to register in your state go to:
www.donatelife.net
804-377-3580
National Registry
United Network for Organ Sharing (UNOS)
www.unos.org
804-782-4800
Kidney Registry:
For information about donating a kidney and kidney chains:
www.kidneyregistry.org
Bone Marrow Registry:
www.marrow.org
1-800-MARROW2
Hospital/Doctor information:
New York-Presbyterian Hospital
www.nyp.org
877-NYP-WELL (9355)
Weill Cornell Medical College
med.cornell.edu
212-746-5454
Morgan Stanley Children's Hospital of NY-Presbyterian
childrensnyp.org
212-305-5437
Columbia University Medical Center
cumc.columbia.edu
212-305-CUMC
Dr. Jean Emond
Vice Chair and Director of Transplantation, NY- Presbyterian/Columbia
asp.cumc.columbia.edu
Dr. Sandip Kapur / Chief of Transplant Surgery
New York-Presbyterian / Weill Cornell Medical Center
Dr. Sandip Kapur
Dr. Linda Addonizio
Director of Pediatric Cardiomyopathy Heart Failure and Transplantation,
NY-Presbyterian/Morgan Stanley Children's Hospital
Dr. Linda Addonizio
Dr. Lloyd Ratner, Surgeon Director of Renal and Pancreatic Transplantation/ Attending Surgeon Renal and Pancreatic Transplantation
NY-Presbyterian/Columbia University Medical Center
Dr. Lloyd Ratner
Dr. Benjamin Samstein Surgical Director/ Attending Surgeon, Living Donor Liver Transplant Program
NY-Presbyterian/Columbia University Medical Center
Dr. Benjamin Samstein
Boomer Esiason Foundation
www.esiason.org
Cameron & Jared Wohl
www.thewaveset.com
"We Are Vital to Each other"
Oasis Youth Steel Pan Ensemble
Oasis Youth Steel Pan Ensemble on Facebook
Kinky Boots
Al Hirschfeld Theater
www.kinkybootsthemusical
Source: https://abc7ny.com/connected-for-life-wabc-abc7-liz-cho/31086/
Pick-up: ABC Local, 6abc Philadelphia, ABC7 Chicago, NJ Sharing Network, ABC7 San Francisco
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Source: https://www.gobrave.org/
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Happy New Year to all of our site visitors. 2013 was a great year for the crowdfunding industry on a global basis but I predict that 2014 will be even better as the industry captures wide-spread acceptance and becomes the norm for funding creative projects, charity and new business ventures. If you would like Crowdfund Insider to take a look at your crowdfunding campaign just send us an email at Info@crowdfundinsider.com.
To start off the New Year we have three really great and diverse crowdfunding campaigns: Hoodsie: Super Comfortable Pima Cotton Onesies for Adults; The Wave Set – Documentary; and Porscha Starr at the Las Vegas International Lingerie Show.
To start off today, I want to share The Wave Set. This is truly a great and admirable crowdfunding campaign. Crowdfunding like this inspires everyone to do good and incredible things.
At 13 years of age Cameron Wohl was diagnosed with a rare autoimmune disease that will affect him for the rest of his life. The disease primarily affects his liver and he was added to the transplant list for the life saving procedure. Eighteen people die every single day waiting for an organ donor.
This past August his doctors told Cameron, and his family, that things have taken a turn for the worse and it was imperative he have a transplant to continue living. Enter his brother Jared.
As fate would have it, Jared is an exact match to transplant a portion of his liver to his brother. This coming February the procedure is going to take place and they want to document the entire process and experience so as to share it with the world. Watch the pitch video. The campaign is already fully funded on Indiegogo where they have surpassed their $30,000 goal but there are still ten days left in the project. Love the Hockey Jersey.
Hoodsie-Onesie has got to have one of the best pitch videos I have seen in a long time. I am still smiling. If there was an award for the best Kickstarter Rap Video – you guys get the gold medal. Check for it in the mail. The video is just part of the allure of this already fully funded Kickstarter crowdfunding campaign. The Hoodsie Pima Cotton Onesie for Adults is without a doubt going to be a big hit. Step aside Snuggies, you have just been trumped. Rush over to Kickstarter today and order your very own Hoodsie and let the coolness aura flow. This campaign is courtesy of Lisa and John in Toronto, Ontario. I want one today.
Finally we have fashion designer Porscha Woodward out of Los Angeles looking for funding to attend the International Lingerie Show in Las Vegas. Crowdfunding on Indiegogo, Porscha Starr the company is looking to raise $5000 to cover the cost associated with the show. I may be a bit biased but the visuals are great. Check it out for yourself. Have you considered some actual lingerie as a reward?
THE WAVE SET – Documentary – Indiegogo
Alone we can do great things, but together we can change the world. Join brothers, Cameron & Jared, as they launch a life-saving movement.
We recognize how vital it is to give the outside world a first-hand look at our personal experiences regarding organ transplantation and how it affects everyday life; the good, the bad, & the ugly. It all begins with this documentary…
We are building a brand that represents unity and most importantly, a promise to give others a second chance at life, through spreading awareness on the importance of organ donation.
OUR STORY
Jared & I are brothers, born 3 years apart, exactly to the day, yet our birthday isn’t the only fascinating connection between to the two of us. You see, I was diagnosed with a rare autoimmune disease, primarily affecting my liver, just over a decade ago. Although my family and I have faced much hardship over the years, things took an unfortunate turn this past August when my doctors explained that they had spotted a tumor on my liver and my disease had been consistently progressing. A liver transplant has now become vital in order for me to continue my life. Due to the high demand of organs regardless of my critical state, I am no where near the top of the list. When doctors posed the idea of undergoing a living-donor transplant (where someone donates 40-60% of their liver, having both the donor & recipient’s liver regenerate to full size) my older brother, Jared, jumped at the opportunity. As fate would have it, he was approved and we are set to undergo the transplant operation this upcoming February. — Cameron
WHAT WE’RE DOING & WHY
Currently, on average 18 people die every day while awaiting an organ transplant and every 10 minutes another person is added to the waiting list. – (organdonor.gov)
We believe that these numbers are inexcusable and we’re doing everything in our power to change that. It all begins with our documentary. So how are we going to do this? It’s simple. We are going to film a raw, real-life depiction of what it has been like for us and our family during this time of adversity, just as it is for the nearly 78,000 other active transplant candidates.
This documentary is the first step in introducing our brand “The Wave Set”, thus educating the world that we truly are vital to each other
Hoodsie: Super Comfortable Pima Cotton Onesies For Adults by Hoodsie – Kickstarter
A Hoodsie is a unisex hooded onesie for adults. Hoodsies are made from super-soft 100% Pima cotton. We’ve designed a onesie that is perfect for lounging around at home but doesn’t look like pajamas. It’s the onesie you could actually leave the house in.
Our Lightweight and Midweight Hoodsies are made from 100% Peruvian Pima Cotton. Known as the ‘King of Cottons’, Peruvian Pima is the softest cotton in the world. It’s extra long staple length makes the Hoodsie extremely soft, but also 40% more durable than a normal cotton onesie. Hoodsies are designed to last for years of lounging. Peruvian Pima is also hand harvested which makes our garment more environmentally friendly.
Porscha Starr at Las Vegas International Lingerie Show – Indiegogo
This show is THE LARGEST lingerie show held in the United States.
Porscha Starr is a premier custom lingerie brand designing only the hottest lingerie and intimate apparel that is tailor made to its client. Based out of Los Angeles California, Porscha Starr was founded April 2011 by CEO Porscha Woodard. Porscha Starr has expanded its business beyond the showroom to its online store www.porschastarr.com Porscha Starr Lingerie is well known for it’s edgy, alluring, fashion forward, sexy designs and custom created lingerie .The Porscha Starr customer is beautiful, sexy, alluring, playful, trendy, bold and fashion forward. Founder and CEO Porscha Woodard envisioned a clothing line that embodied the various surfaces of a woman: classy, sexy and edgy. Inspired by futuristic styles and trends, Porscha Starr Lingerie creates custom pieces that evoke confidence and high energy unveiling a Starr in every woman.
A Starr is emerging and ready to take over the largest stage for lingerie in the United States; the Las Vegas International Lingerie Show! However, with every big dream a financial seed must first be planted. To accomplish the goal of participating in the International Lingerie Show, we need $5,000 by February 4th. This will include transportation to Las Vegas, cost of materials, and other expenses to accomplish the show. With a fundraising goal of $5,000 raising money with Porscha Starr has its sexy perks to get involved. Persons who donate have the opportunity to attend exclusive photo shoots, receive autographed pictures, or be given the VIP treatment at the next Porscha Starr Fashion Show.
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This is a story of a young man who realizes the fragility of life all too well. Cameron was diagnosed with an auto-immune liver disease over a decade ago at age 13 – his parents were told that the only cure, would eventually be a liver transplant. The time has come and he now needs a liver transplant in order to survive but in reality, he knows that with the organ shortage, the odds aren’t on his side. But fate intervened & his brother, Jared is a perfect match. His transplant is tentatively scheduled for February. But that is only the beginning of Cameron’s story. He and his brother are starting a “Wave” to increase awareness & in my opinion, it Rocks! Check it out… S
Cameron’s story in his words:
Jared & I are brothers, born 3 years apart, exactly to the day, yet our birthday isn’t the only fascinating connection between to the two of us. You see, I was diagnosed with a rare autoimmune disease, primarily affecting my liver, just over a decade ago. Although my family and I have faced much hardship over the years, things took an unfortunate turn this past August when my doctors explained that they had spotted a tumor on my liver and my disease had been consistently progressing. A liver transplant has now become vital in order for me to continue my life. Due to the high demand of organs regardless of my critical state, I am no where near the top of the list. When doctors posed the idea of undergoing a living-donor transplant (where someone donates 40-60% of their liver, having both the donor & recipient’s liver regenerate to full size) my older brother, Jared, jumped at the opportunity. As fate would have it, he was approved and we are set to undergo the transplant operation this upcoming February.
Currently, on average 18 people die every day while awaiting an organ transplant and every 10 minutes another person is added to the waiting list – (organdonor.gov). We believe that these numbers are inexcusable and we’re doing everything in our power to change that. It all begins with our documentary. So how are we going to do this? It’s simple. We are going to film a raw, real-life depiction of what it has been like for us and our family during this time of adversity, just as it is for the nearly 78,000 other active transplant candidates. This documentary is the first step in introducing our brand “The Wave Set, thus educating the world that we truly are vital to each other. — Cameron
Like many of us who know the reality of the organ shortage, feel the pain of knowing that your only hope for survival is an organ transplant and have the desire to increase awareness of the need for organ donors, these guys are launching a life saving movement. Check it out, you will be inspired… S
http://www.indiegogo.com/projects/the-wave-set-documentary
Source: http://www.facesofhopeforlife.org/?p=1102
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We recognize how vital it is to give the outside world a first-hand look at our personal experiences regarding organ transplantation and how it affects everyday life; the good, the bad, & the ugly. It all begins with this documentary...
We are building a brand that represents unity and most importantly, a promise to give others a second chance at life, through spreading awareness on the importance of organ donation.
OUR STORY
Jared & I are brothers, born 3 years apart, exactly to the day, yet our birthday isn't the only fascinating connection between to the two of us. You see, I was diagnosed with a rare autoimmune disease, primarily affecting my liver, just over a decade ago. Although my family and I have faced much hardship over the years, things took an unfortunate turn this past August when my doctors explained that they had spotted a tumor on my liver and my disease had been consistently progressing. A liver transplant has now become vital in order for me to continue my life. Due to the high demand of organs regardless of my critical state, I am no where near the top of the list. When doctors posed the idea of undergoing a living-donor transplant (where someone donates 40-60% of their liver, having both the donor & recipient's liver regenerate to full size) my older brother, Jared, jumped at the opportunity. As fate would have it, he was approved and we are set to undergo the transplant operation this upcoming February. -- Cameron
WHAT WE'RE DOING & WHY
Currently, on average 18 people die every day while awaiting an organ transplant and every 10 minutes another person is added to the waiting list. - (organdonor.gov)
We believe that these numbers are inexcusable and we're doing everything in our power to change that. It all begins with our documentary. So how are we going to do this? It's simple. We are going to film a raw, real-life depiction of what it has been like for us and our family during this time of adversity, just as it is for the nearly 78,000 other active transplant candidates.
This documentary is the first step in introducing our brand "The Wave Set", thus educating the world that we truly are vital to each other.
HOW YOU CAN HELP
In order to facilitate a world-wide movement and save the many lives that need our help, everyone needs to pitch in. With your pledge, we can turn this concept into a reality and the documentary will be just the beginning. Simply put, we cannot afford all of these expenses...
Here is a breakdown of our costs:
Pre-Production: $3,000
Production: $10,400
Post-Production: $6,500
Emergency/Miscellaneous Fund (just in case): $2,000
IndieGogo/3rd Party Credit Card Fees: $2,100
Overhead: $6000
We are using this documentary to shed light on the importance of organ donation and demand for donors, while eliminating the fallacies with becoming a donor. Once the documentary is filmed, we are then going to continue to spread awareness through the following ways:
Spend countless hours pitching the film to network television, film festivals, & the general public.
Perform speaking engagements.
Plan and put together live events w/ musical acts & other entertainment.
Launch our full line of "The Wave Set" apparel.
We understand the importance of taking a grassroots approach in getting our peers to become organ donors and are willing to do everything in our power to do so. Bottom line, you're pledge will help us make this a reality.
Source: https://www.indiegogo.com/projects/the-wave-set-documentary#/
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